Medical Setback

[Bionic Modeler]

I was told that my condition is stationary and permanent. I have no surgical options. At least that is what they told me 4 years ago. The nerve damage is too severe. I can't afford to go back to the original surgion. He is the only guy within 600 miles that treats this condition. The first surgeries almost bankrupted us as they don't accept insurance. I had to pay most out of pocket. Can't do that again. I am not too hopeful at this point and don't want to live with this the rest of my life.

[Bionic Modeler]

Spending my days watching TV. Been watching the new series Titanic Blood and Steel. I wonder how close this is to the real history. Can't dp anything else. Been trying to check in on what is happening. Going to see a new neurologist pretty soon will know more then.

[Vermin_King]

TV palls in comparison to doing.

Let's hope your back to 'doing' real soon. Take care.

[Ron0909]

Tim,
Best of luck with your new neurologist. I've been tagging along with my wife for almost a quarter of a century now to her neuro. appointments. One thing I can say about that breed of doctor is that they are all strangely stunted, weird, socially inept *and* brilliant ! Please keep trying as I know one will eventually figure it out for you. I feel for you in regard to the medications...the cure sometimes feels worse than the symptoms. Hang in there buddy and you'll be cutting paper again in no time. I'm praying for you

Ron

[Darwin]

Tim, I wish you the best. I know what you're having to contend with, and it does rob you of most of what was worth living for.

[Kevin WS]

Tim,

My thoughts are with you. Not fun. Hang in.

[Bionic Modeler]

Thanks, I finally got up and went for a walk (if you want to call it that). Two canes and I made it about 50 yards then everything went bonkers. Took twice as long to gt back now I am laying here in my reclining power chair checking in for word from my friends. Thanks again.

[Kevin WS]

Well do not give up.

If walking is OK and will not make anything worse, then plan "small trips". To do something each time.

[Bionic Modeler]

Originally Posted by ghshinn

Best wishes. I had a friend who had PN as the result of cycling. Here's hoping you will have the same recovery he had. I will pray for wisdom for your doctors.

Garland

What did your friend do fo his? I have had the surgery and now it is back to where it was before the surgery. I am always looking for some help. Maybe you could put me in touch with him?

[Paper Kosmonaut]

Get well soon, Tim. My thoughts are with you. All the best and don't give up!